Tuesday Carl needed Platelets, so we went to Bronson to get those... while we were there Carl was able to get in a nice nap. Before Platelets Carl and I went to get back massages done... MAN it was soo nice and relaxing. :)
Wednesday was a CRAZY day!! We got up at 6am to hit the road to go to Bronson. We had to be there at 7am to get ready for Carl's 8am LP. They needed to give him platelets during the procedure to reduce the risk of any side effects. Carl cut off his blood type band that the hospital gave him on Tuesday, which apparently is a big deal...So they had to re-type him, which took some time. Then they finally hung up his platelets and got him 30 minutes late into his LP. After his LP he needed to lay flat for 1 hour. We needed to go to the Cancer Center after the hour was over for chemo, however we did not know what time they were expecting us. (Carl was ready for Lunch) so we found out that the Cancer Center was not planning on us until 2pm. After the bag of platelets was finished we left to go to lunch. Carl and I enjoyed a nice lunch at Mongolian Grill. While we were eating the hospital called us to tell us that they messed up and that Carl actually needed 2 bags of platelets and that we need to come back so that he can get the rest of the order. So back to Bronson we went... While we were waiting for the platelets to run into Carl's system we received a call from the Cancer Center and wanted to know if we were on our way over there. I told them that we were still at Bronson and that as soon as the platelets were done we would be on our way. The nurse was calling to tell us that our insurance would not pay for the chemo if it was done at the Cancer center because they do not consider it a hospital facility.... So we went to the cancer center to meet with our doctor and to re-schedule Carl's Chemo.
Meeting with the doctor went well, we waited for a long time because Carl's forgotten bag of platelets took a hour and 45 mins and we showed up at 2:30 for our 2pm appointment. (We were seen by the doctor at 4:30) Our Doctor said that she is VERY impressed with Carl's progress and that he looks great. She told him he is doing a great job with his diabetes and that next week we need to see her again, and that she was going to start tapering him off of his prednisone **This is the drug that is inducing the diabetes** She is hoping that we can get to Chicago next week as well for consultation visit.
Carl's Chemo was rescheduled on Thursday at the hospital.
Bonnie came up Wednesday night and made dinner for us, I went to work on Thursday and Bonnie drove Carl to the doctors for his Chemo Treatment.... This again turned out to be a long trip with lots of hiccups.
Friday Carl's Dad and Sister fought the winter storm and came out to spend time with us.
Carl is doing well, he has decided that there is a limited amount of things he can actually do right now, so he will do those things and no one else... Therefore, I have not cooked a single meal, or did a single dish since we have been home... I promise I am trying, but those are things that Carl wants to do right now... And the food is Delicious!!! ( I had the best venison I have EVER had for lunch the other day).
Carl is having frequent head aches and enjoys sitting in the chair with a blanket draped over his head, makes him feel better. He often gets head aches when in the car as well. He has not had any nausea with his treatments. His hair is thinning, but it is still there. **No, it does not feel loose** ( I asked him one night if it did) He is still having trouble sleeping through the night, he is up often to go to the bathroom, and somehow a snack finds him every time he wakes up. Carl's White Blood Cell count dropped with the last chemo so right now, more than ever, it is very easy for him to get sick.
Next Wednesday is our appointment with our Dr. and we are keeping our fingers crossed for Chicago!
Glad you are home Carl! Your week sounded pretty busy and a lot crazy with all the scheduling stuff. Stay positive and know that we're all thinking about you a great deal! -Dean at DykhuisFarms
ReplyDeleteHi I'm Ashley I found your blog today looking for others going through similar situations. You guys have been through so much in a short time. I can certainly relate to many of your posts, I am going through AML. I wish you all the best of luck with treatments and will continue to follow your blog. I also write about my experience too at www.girlwiththeswirl.com. All the best, Ashley.
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